Serveur d'exploration SRAS

Attention, ce site est en cours de développement !
Attention, site généré par des moyens informatiques à partir de corpus bruts.
Les informations ne sont donc pas validées.

The challenge of providing holistic care in a viral epidemic: opportunities for palliative care

Identifieur interne : 000237 ( Psycho/Analysis ); précédent : 000236; suivant : 000238

The challenge of providing holistic care in a viral epidemic: opportunities for palliative care

Auteurs : Ian Yi-Onn Leong ; Angel Onn-Kei Lee ; Tzer Wee Ng ; Lay Beng Lee ; Nien Yue Koh [Singapour] ; Eliada Yap ; Sarah Guay [Singapour] ; Lee Min Ng [Singapour]

Source :

RBID : ISTEX:598901E77B4890C3C98122196B56438261CE3A48

English descriptors

Abstract

Objective: To determine, using the perspective of a hospital-based palliative care service (PCS), the spiritual and psychosocial impact of a novel and potentially fatal viral epidemic on patients, their families and health care workers. Design: Qualitative study using semi-structured interviews. The data were analysed using the constant comparative method and were validated using respondent validation. Participants: Eight palliative care workers. Setting: Tan Tock Seng Hospital (TTSH), the hospital designated to manage all cases of Severe Acute Respiratory Syndrome (SARS) in Singapore. Results: Disease containment resulted in isolation, where isolation meant the disruption of connectedness. This disruption of connectedness took place at multiple levels: in the patient himself, between the patient and the family, within the family, between the patient and the health care worker, between the patient and society, and between health care workers. As the nature of the disease was uncertain, prognostication was inaccurate. This created difficulties in helping patients and their families prepare for death. The fear of facing the unknown led to safety-seeking behaviours, which could be overcome by repeated exposure to the feared situation. The process of bereavement was disturbed, as traditional death rituals could not be performed by the family. Informants perceived themselves to be suffering as they suffered the same anxieties, fears and grief as the patient. Conclusions: Dealing with a novel viral epidemic creates spiritual and psychosocial issues similar to those encountered in a palliative care practice. Palliative care workers would do well to be aware of such issues and act proactively when such epidemics arise.

Url:
DOI: 10.1191/0269216304pm859oa


Affiliations:


Links toward previous steps (curation, corpus...)


Links to Exploration step

ISTEX:598901E77B4890C3C98122196B56438261CE3A48

Le document en format XML

<record>
<TEI wicri:istexFullTextTei="biblStruct">
<teiHeader>
<fileDesc>
<titleStmt>
<title xml:lang="en">The challenge of providing holistic care in a viral epidemic: opportunities for palliative care</title>
<author wicri:is="90%">
<name sortKey="Leong, Ian Yi Onn" sort="Leong, Ian Yi Onn" uniqKey="Leong I" first="Ian Yi-Onn" last="Leong">Ian Yi-Onn Leong</name>
</author>
<author wicri:is="90%">
<name sortKey="Lee, Angel Onn Kei" sort="Lee, Angel Onn Kei" uniqKey="Lee A" first="Angel Onn-Kei" last="Lee">Angel Onn-Kei Lee</name>
</author>
<author wicri:is="90%">
<name sortKey="Ng, Tzer Wee" sort="Ng, Tzer Wee" uniqKey="Ng T" first="Tzer Wee" last="Ng">Tzer Wee Ng</name>
</author>
<author wicri:is="90%">
<name sortKey="Lee, Lay Beng" sort="Lee, Lay Beng" uniqKey="Lee L" first="Lay Beng" last="Lee">Lay Beng Lee</name>
</author>
<author wicri:is="90%">
<name sortKey="Koh, Nien Yue" sort="Koh, Nien Yue" uniqKey="Koh N" first="Nien Yue" last="Koh">Nien Yue Koh</name>
</author>
<author wicri:is="90%">
<name sortKey="Yap, Eliada" sort="Yap, Eliada" uniqKey="Yap E" first="Eliada" last="Yap">Eliada Yap</name>
</author>
<author wicri:is="90%">
<name sortKey="Guay, Sarah" sort="Guay, Sarah" uniqKey="Guay S" first="Sarah" last="Guay">Sarah Guay</name>
</author>
<author wicri:is="90%">
<name sortKey="Ng, Lee Min" sort="Ng, Lee Min" uniqKey="Ng L" first="Lee Min" last="Ng">Lee Min Ng</name>
</author>
</titleStmt>
<publicationStmt>
<idno type="wicri:source">ISTEX</idno>
<idno type="RBID">ISTEX:598901E77B4890C3C98122196B56438261CE3A48</idno>
<date when="2004" year="2004">2004</date>
<idno type="doi">10.1191/0269216304pm859oa</idno>
<idno type="url">https://api.istex.fr/ark:/67375/M70-J4LN7W5Z-H/fulltext.pdf</idno>
<idno type="wicri:Area/Istex/Corpus">000063</idno>
<idno type="wicri:explorRef" wicri:stream="Istex" wicri:step="Corpus" wicri:corpus="ISTEX">000063</idno>
<idno type="wicri:Area/Istex/Curation">000063</idno>
<idno type="wicri:Area/Istex/Checkpoint">001D27</idno>
<idno type="wicri:explorRef" wicri:stream="Istex" wicri:step="Checkpoint">001D27</idno>
<idno type="wicri:doubleKey">0269-2163:2004:Leong I:the:challenge:of</idno>
<idno type="wicri:Area/Main/Merge">005A95</idno>
<idno type="wicri:Area/Main/Curation">005649</idno>
<idno type="wicri:Area/Main/Exploration">005649</idno>
<idno type="wicri:Area/Psycho/Extraction">000237</idno>
</publicationStmt>
<sourceDesc>
<biblStruct>
<analytic>
<title level="a" type="main" xml:lang="en">The challenge of providing holistic care in a viral epidemic: opportunities for palliative care</title>
<author wicri:is="90%">
<name sortKey="Leong, Ian Yi Onn" sort="Leong, Ian Yi Onn" uniqKey="Leong I" first="Ian Yi-Onn" last="Leong">Ian Yi-Onn Leong</name>
</author>
<author wicri:is="90%">
<name sortKey="Lee, Angel Onn Kei" sort="Lee, Angel Onn Kei" uniqKey="Lee A" first="Angel Onn-Kei" last="Lee">Angel Onn-Kei Lee</name>
</author>
<author wicri:is="90%">
<name sortKey="Ng, Tzer Wee" sort="Ng, Tzer Wee" uniqKey="Ng T" first="Tzer Wee" last="Ng">Tzer Wee Ng</name>
</author>
<author wicri:is="90%">
<name sortKey="Lee, Lay Beng" sort="Lee, Lay Beng" uniqKey="Lee L" first="Lay Beng" last="Lee">Lay Beng Lee</name>
</author>
<author wicri:is="90%">
<name sortKey="Koh, Nien Yue" sort="Koh, Nien Yue" uniqKey="Koh N" first="Nien Yue" last="Koh">Nien Yue Koh</name>
<affiliation wicri:level="1">
<country xml:lang="fr">Singapour</country>
<wicri:regionArea>Palliative Care Service and Department of General Medicine, Tan Tock Seng Hospital</wicri:regionArea>
<wicri:noRegion>Tan Tock Seng Hospital</wicri:noRegion>
</affiliation>
</author>
<author wicri:is="90%">
<name sortKey="Yap, Eliada" sort="Yap, Eliada" uniqKey="Yap E" first="Eliada" last="Yap">Eliada Yap</name>
</author>
<author wicri:is="90%">
<name sortKey="Guay, Sarah" sort="Guay, Sarah" uniqKey="Guay S" first="Sarah" last="Guay">Sarah Guay</name>
<affiliation wicri:level="1">
<country xml:lang="fr">Singapour</country>
<wicri:regionArea>Palliative Care Service and Nursing Service, Tan Tock Seng Hospital</wicri:regionArea>
<wicri:noRegion>Tan Tock Seng Hospital</wicri:noRegion>
</affiliation>
</author>
<author wicri:is="90%">
<name sortKey="Ng, Lee Min" sort="Ng, Lee Min" uniqKey="Ng L" first="Lee Min" last="Ng">Lee Min Ng</name>
<affiliation wicri:level="1">
<country xml:lang="fr">Singapour</country>
<wicri:regionArea>Department of Pharmacy, Tan Tock Seng Hospital</wicri:regionArea>
<wicri:noRegion>Tan Tock Seng Hospital</wicri:noRegion>
</affiliation>
</author>
</analytic>
<monogr></monogr>
<series>
<title level="j">Palliative Medicine</title>
<idno type="ISSN">0269-2163</idno>
<idno type="eISSN">1477-030X</idno>
<imprint>
<publisher>Sage Publications</publisher>
<pubPlace>Sage CA: Thousand Oaks, CA</pubPlace>
<date type="published" when="2004-01">2004-01</date>
<biblScope unit="volume">18</biblScope>
<biblScope unit="issue">1</biblScope>
<biblScope unit="page" from="12">12</biblScope>
<biblScope unit="page" to="18">18</biblScope>
</imprint>
<idno type="ISSN">0269-2163</idno>
</series>
</biblStruct>
</sourceDesc>
<seriesStmt>
<idno type="ISSN">0269-2163</idno>
</seriesStmt>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="Teeft" xml:lang="en">
<term>Cohort</term>
<term>Connectedness</term>
<term>Containment</term>
<term>Different cohorts</term>
<term>Disease containment</term>
<term>Disease containment measures</term>
<term>Disease episode</term>
<term>Disruption</term>
<term>Family members</term>
<term>Family unit</term>
<term>First author</term>
<term>Funeral arrangements</term>
<term>Gastric carcinoma</term>
<term>General medicine</term>
<term>Geriatric medicine</term>
<term>Health care worker</term>
<term>Health care workers</term>
<term>Inaccurate prognostication</term>
<term>Infectious disease</term>
<term>Informant</term>
<term>Last words</term>
<term>Multidisciplinary teams</term>
<term>Other health care workers</term>
<term>Oxford textbook</term>
<term>Oxford university press</term>
<term>Palliative</term>
<term>Palliative care</term>
<term>Palliative care practice</term>
<term>Palliative care service</term>
<term>Palliative care team</term>
<term>Palliative care teams</term>
<term>Palliative care workers</term>
<term>Palliative medicine</term>
<term>Patient care</term>
<term>Paulist press</term>
<term>Probable cases</term>
<term>Psychosocial</term>
<term>Psychosocial care</term>
<term>Psychosocial impact</term>
<term>Psychosocial issues</term>
<term>Psychosocial support</term>
<term>Respiratory syndrome</term>
<term>Respondent validation</term>
<term>Safety behaviours</term>
<term>Same anxieties</term>
<term>Same fears</term>
<term>Sars</term>
<term>Sars crisis</term>
<term>Sars patients</term>
<term>Seng</term>
<term>Singapore</term>
<term>Spiritual care</term>
<term>Spiritual problems</term>
<term>Such epidemics</term>
<term>Such issues</term>
<term>Team members</term>
<term>Tock</term>
<term>Tock seng hospital</term>
<term>Traditional death rituals</term>
<term>Training health care workers</term>
<term>Ttsh</term>
<term>Viral epidemic</term>
<term>World religions</term>
</keywords>
</textClass>
<langUsage>
<language ident="en">en</language>
</langUsage>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">Objective: To determine, using the perspective of a hospital-based palliative care service (PCS), the spiritual and psychosocial impact of a novel and potentially fatal viral epidemic on patients, their families and health care workers. Design: Qualitative study using semi-structured interviews. The data were analysed using the constant comparative method and were validated using respondent validation. Participants: Eight palliative care workers. Setting: Tan Tock Seng Hospital (TTSH), the hospital designated to manage all cases of Severe Acute Respiratory Syndrome (SARS) in Singapore. Results: Disease containment resulted in isolation, where isolation meant the disruption of connectedness. This disruption of connectedness took place at multiple levels: in the patient himself, between the patient and the family, within the family, between the patient and the health care worker, between the patient and society, and between health care workers. As the nature of the disease was uncertain, prognostication was inaccurate. This created difficulties in helping patients and their families prepare for death. The fear of facing the unknown led to safety-seeking behaviours, which could be overcome by repeated exposure to the feared situation. The process of bereavement was disturbed, as traditional death rituals could not be performed by the family. Informants perceived themselves to be suffering as they suffered the same anxieties, fears and grief as the patient. Conclusions: Dealing with a novel viral epidemic creates spiritual and psychosocial issues similar to those encountered in a palliative care practice. Palliative care workers would do well to be aware of such issues and act proactively when such epidemics arise.</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>Singapour</li>
</country>
</list>
<tree>
<noCountry>
<name sortKey="Lee, Angel Onn Kei" sort="Lee, Angel Onn Kei" uniqKey="Lee A" first="Angel Onn-Kei" last="Lee">Angel Onn-Kei Lee</name>
<name sortKey="Lee, Lay Beng" sort="Lee, Lay Beng" uniqKey="Lee L" first="Lay Beng" last="Lee">Lay Beng Lee</name>
<name sortKey="Leong, Ian Yi Onn" sort="Leong, Ian Yi Onn" uniqKey="Leong I" first="Ian Yi-Onn" last="Leong">Ian Yi-Onn Leong</name>
<name sortKey="Ng, Tzer Wee" sort="Ng, Tzer Wee" uniqKey="Ng T" first="Tzer Wee" last="Ng">Tzer Wee Ng</name>
<name sortKey="Yap, Eliada" sort="Yap, Eliada" uniqKey="Yap E" first="Eliada" last="Yap">Eliada Yap</name>
</noCountry>
<country name="Singapour">
<noRegion>
<name sortKey="Koh, Nien Yue" sort="Koh, Nien Yue" uniqKey="Koh N" first="Nien Yue" last="Koh">Nien Yue Koh</name>
</noRegion>
<name sortKey="Guay, Sarah" sort="Guay, Sarah" uniqKey="Guay S" first="Sarah" last="Guay">Sarah Guay</name>
<name sortKey="Ng, Lee Min" sort="Ng, Lee Min" uniqKey="Ng L" first="Lee Min" last="Ng">Lee Min Ng</name>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Sante/explor/SrasV1/Data/Psycho/Analysis
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000237 | SxmlIndent | more

Ou

HfdSelect -h $EXPLOR_AREA/Data/Psycho/Analysis/biblio.hfd -nk 000237 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Sante
   |area=    SrasV1
   |flux=    Psycho
   |étape=   Analysis
   |type=    RBID
   |clé=     ISTEX:598901E77B4890C3C98122196B56438261CE3A48
   |texte=   The challenge of providing holistic care in a viral epidemic: opportunities for palliative care
}}

Wicri

This area was generated with Dilib version V0.6.33.
Data generation: Tue Apr 28 14:49:16 2020. Site generation: Sat Mar 27 22:06:49 2021